Yesterday I had my lumbar puncture which was more of a nuisance than I thought it would be, the purpose being to ensure that there are no cancerous cells within my cerebrospinal fluid. I was told that I would experience headaches throughout the day afterward but I didn’t seem to have any symptoms at all. I had bloodwork done as well and saw that my white blood cell count has been dropping but my other counts (platelets, hemoglobin) have remained within normal ranges so I haven’t needed any blood product transfusions.
Tomorrow I have another appointment with Dr.Schuh who is back in the clinic now. Hopefully he will think this nelarabine protocol is working, and will tell us how many cycles he thinks is best. I will also ask about setting up an appointment with the transplant team so we can start organizing a time to receive my bone marrow transplant. After that appointment tomorrow, my family and I are off to the airport and headed to Florida for the weekend which I’m very excited about. Not sure if there are any published chemo protocols including sunshine and saltwater but it can’t hurt to try.
I wanted to give a big thank you to everyone who has been keeping up with my blog and my fight so far, there has been a huge outpouring of support from so many truly kind people, and situations like the one I am in really illuminate all of those around you who truly care. I have received feedback from readers saying that there aren’t enough updates, so I will try to appease you all with more frequent little updates along the way. I will also make more of an effort to respond to comments because I haven’t been very good with that. Anyway, stay tuned for photos from down south!