I am writing this for Ethan as he is having some trouble with fine motor function with his hands, which as he has also lost feeling below his waist is frustrating for him. For a while we were not sure if this unusual symptom was caused by the cancer or the treatment but increasingly it seems it may well be the cancer. Things have not gone well lately but we did have an informative Doctors meeting on Friday. Next week we return to methotrexate in the lumbar puncture cocktail in an attempt to clear his cerebral spinal fluid.
From a Dad’s perspective I have never been so proud of my boy as the courage he has shown in he face of such as scarey situation is difficult for me to articulate. Wish him well. He is still fighting..