The last couple of days I’ve been able to come home during the daytime since I don’t need to be at the hospital for anything until I get my 10 pm medication. It’s a nice break from the usual routine, and a nice break from the PMH wifi which is borderline unusable during business hours.
I actually haven’t been connected to my IV for the past few days, which makes getting around much easier. Since I don’t have any drip medication, I can stay capped off as long as I drink a lot of water.
There have been some developments in terms of my treatment plan. Dr. Gupta is still on leave, so the top dog in the hematology unit right now is Dr. Shu. He has apparently written letters to request approval for a drug that isn’t typically used to see if it can get me into remission. We’ll be meeting with him tomorrow to ask about this drug, and about other potential directions and why he chose this one. Knowledge is power.
I’ll post another update tomorrow after I speak to Dr. Shu