Just wanted to post an update with what is scheduled in terms of my transplant. Although we were thinking we would be going to either Cleveland or Buffalo, it is looking very likely that we will be staying in Toronto and I’ll do my transplant at PMH. So far, everything looks to be aiming towards… Continue reading September 17th, 2016

Currently receiving my first dose of the third cycle of nelarabine I will be getting. Since weve moved ahead with the transplant, we’ve decided to do more chemo to keep the leukemeia at bay. Dr. Shuh’s thinking is that chemo in the interim as we wait for a transplant is not necessarily a bad idea… Continue reading September 12th, 2016

Following the good news we heard yesterday about the state of my disease, I wanted to make an update today to kind of shed some light on what remission really means. Although this certainly is good news, remission is a long, long way away from being healthy.  As of now, we know that fewer than… Continue reading September 2nd, 2016

Currently sitting at Molson Canadian Amphitheatre waiting for Florida Georgia Line to come out. Dr. Shuh called a couple hours ago with some good news so my mom and I are are celebrating. Today I had a biopsy done of my bone marrow and as of right now I am in remission. Just a quick… Continue reading September 1st, 2016

Yesterday was my last day of receiving nelarabine for my second cycle of this drug. Hopefully that is the last nelarabine I ever need, as the doctors will be assessing whether I am in remission on Thursday by looking at my bone marrow. If fewer than 5% of cells are blast cells then Im in… Continue reading August 27th, 2016

Right now we are on our way home from Florida, which has been a welcome hiatus. Good lord is it ever hot here in August. We did some fishing yesterday, and I managed to catch a couple small sharks and a grouper.  Unfortunately, I got some bad news right before we left. They found cancerous… Continue reading August 14th, 2016

Yesterday I had my lumbar puncture which was more of a nuisance than I thought it would be, the purpose being to ensure that there are no cancerous cells within my cerebrospinal fluid. I was told that I would experience headaches throughout the day afterward but I didn’t seem to have any symptoms at all.… Continue reading August 9th, 2016

Yesterday I had a meeting with a doctor who works in Dr. Schuh’s office. I thought I was going to get chemo, but as it turns out the nelarabine protocol only calls for three doses within the 21-day cycle. So the next chemo I get will be on August 18th. Dr. Schuh is away until… Continue reading August 5th, 2016